Mixed Connective Tissue Disease. Apparently, I've got a little of that in me? When I went to see the rheumatologist a few weeks ago, I missed when he told me this. Or maybe I wasn't paying attention? I remember him saying, "Hey, one of your blood tests came back barrrrrrrrely positive, so I'm putting you on hydrochloroquine and I'll see you in 3 weeks." I think that's how it went.
Anyway, remember last time when I said I was an interesting case? Well, this is why. It's considered an "overlap syndrome" because a lot of different symptoms show up with it. BUUUT, the prognosis is good because it responds to corticosteroids and is generally treatable. Good for me, because at this point, I'm not even showing symptoms.
Common symptoms include: fatigue, cold, numb fingers, muscle and joint pain, and SAUSAGE FINGERS. I know I shouldn't laugh, but literally, EVERY SINGLE GOOGLE SEARCH PAGE lists "sausage fingers" as a symptom! I just can't help but giggle.
Aaaaanywho. Went to see the eye doctor again and for the first time in a month and a half, she was pleased with my progress and told me to come back in a MONTH. HOWEVER. My pupil is a different shape? Nothing to be alarmed about, but it freaked me out when I first noticed. For those of you who love Google, you've probably googled all the crazy things I've been writing about. I'm guilty of this as well. But apparently, pupils change shape a little as the inflammation is healing. I swear, some of these Google images show Starship Enterprise-shaped pupils. But it's nice to not have to schedule my life around appointments.
Wake up. Put on glasses. Eat Breakfast. Eye drops. Multivitamin. Prednisone. Hydrochloroquine. Live a little. Eat Lunch. Maybe work some. Eat Dinner. Another Prednisone. This is my day. Not too shabby.
Except for my glasses. Had these since 2004. Soon to be fixed by the amazing Natalie Gainey.
In other news, our last day at The Lord's Church was last week. It's a really bitter sweet time for us. We've been there since 2009. They've been our support through our ENTIRE engagement, walked through almost the whole three years we've been married, and helped us spiritually, emotionally and financially through school, fires, moves, car wrecks, and all kinds of other disasters. We COULD NOT have made it through the last 3 years without them. Wouldn't have been possible. I got to hug everybody again at church and it broke my heart thinking that I won't be able to hug them again next week and watch our students grow into adults. I gotta stop writing about this. It's the prednisone. It makes me cry.
Lots of things are on the horizon. Good to know God is in control. And good to know someone out there made a recipe for homemade girl scout samoas, because I made these beauties. You're welcome.
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